Wednesday, February 20, 2019

Saying Goodbye to some doctors appointments

We have said it before and I will say it again, the NICU life does not end at discharge.  Most babies can be seeing specialist up until age 2 or even beyond that, so it takes time!  For us between February 6-18th, we had 4 appointments with doctors and specialists, that is a lot (and definitely does not give Olivia enough time to forget what just happened, she screams the second she gets placed on the scale for weight)!  Thankfully that does not happen too often, but it is not unusual either.  These last few weeks, though, brought some good news and a goodbye to one doctor--Olivia's cardiologist!  Honestly, one of my favorites, Dr. Allen, is the kind of doctor you hope for, just not hope for your child to be seeing a cardiologist.  He takes time to explain everything, to interact with your kid, and understands their limitations and need to be close to mom or dad.  He has a wonderful heart, apologized profusely when he was running 10 minutes behind because he had to take his son his lunch that he had left behind, and just such a warm and caring doctor.  I cannot recommend him enough if you have any pediatric cardiology needs.  I actually left the appointment and told Marc I will miss seeing him, though I am not sad we got discharged.  We talked about Olivia's heart thrombus here (where I apparently was also singing Dr. Allen's praises), anyway, the goal was for her body to naturally absorb the calcification that occurred when she had the umbilical line placed and the MRSA infection and her body did just that.  On her echo yesterday you could not longer see the thrombus, so he signed off saying she no longer had her intracardiac mass/thrombus and had a normal echo!  Dr. Allen, like all Olivia's doctors are pleased with her progress.  We hear time and time again, you would never know she was a preemie now!

Among the other good news, was our 1 year appointment with the NICU clinic.  She was/will be seen at 6 months, 1 year, and 18 months (and 2 years if needed, but the hope is to be discharged at 18 months).  Well at her 1 year adjusted (14.5 months actual) appointment, she met her a nurse practitioner, a physical therapist, an occupational therapist, and a speech therapist (at her 6 month appointment she also saw the pediatric dentist, but he was not in the office the day we went this time).  Based on their assessment, she is tracking at 14-15 months (her actual age) in both OT and speech, and is tracking right about 12 months (her adjusted) age for PT.  The nurse practitioner said she looked like a happy, health 14.5 month old baby girl.  So overall, we left the appointment feeling very encouraged.  Olivia is right where she needs to be for the time being.  We are continuing with PT services at home twice a month (they recommend continuing for at least the next 3 months) and hope that by her 18 month appointment in July that she will be able to be discharged from these appointments too!

If you cannot already tell, we are proud parents--proud of the little girl Olivia is turning out to be and super proud of how far she has come from her tiny 2 pound 4 ounce self.  (Did I mention she is now 20 pounds, over 2 feet tall, and wearing 18 month clothes--CRAZY!)

Here are some fun day to day pictures of her preciousness...

Thanks Cousin Matt for the most adorable outfit!

Bed Hair, don't care!

She wakes up every single day with that smile on her face, we are certainly blessed!

Wednesday, February 13, 2019

Happy Valentine's Day!

💕Happy Valentine's Day!!💕


It cracks me up how she holds her pacifier like an old man smoking a cigar! 

6 teeth, can you see them all?

Love, Olivia

Thursday, January 31, 2019

Olivia's First Birthday and Beyond

So for awhile there I was doing really well with the monthly updates then we hit one year and all of the sudden we dropped off the face of the earth!  Not really, but we have a mobile child who likes the attention of her parents, so free time is non-existent!  So here is a much overdue update on our sweet Olivia!  

Just before her first birthday, we went back to her NICU and visited her favorite nurse there, she actually really did not want to go see her, but we got her calm enough for a cute picture.  This is Olivia just before her first birthday (on the left) and at the day of discharge at two months old (on the right). 


The difference a year makes, this is my first time holding Olivia on the left and probably the 857th time holding her on the right (this was at her first birthday party) :)

Olivia still loves her swing (though this picture is not a convincing one), we did finally get around to putting one up in the backyard for her. 

Olivia's first birthday party was Snow white themed (Yes I got to pick it cause she has no opinion yet) and it was well attended by family and friends alike! 
Marc's side of the family


We put up an outfit from each stage--preemie, newborn, 3 months, 6 months, 9 months and a year!  The visual difference is crazy!

Olivia loved playing in the icing, though she did not get too much actually in her mouth!


This is my ladies bible study group, who were all able to make it to celebrate Olivia.  We are so loved!

The Grumbles family and us (plus Andy joining in on the fun)

The Whitman group:

My side of the family

Quickly following Olivia's first birthday was Thanksgiving.  It is fun having her home for all her first holidays at home!

See, I told you she loves the swing:

We took a day and went to Busch Gardens Christmastown, and Olivia met Santa, neither was too impressed!

I love this picture of Olivia cause she looks so grown up, more like a toddler and less baby like. 

Mommy kisses are a faborite!

We still do not like Santa!

But all other things Christmas are okay with her--the bows, the lights, the presents...


We had a big snowfall in December and we got her all dressed up to get a picture in it.  We all lasted maybe 10 minutes outside but at least it makes for a cute picture.

Olivia was able to attend a couple of VCU games this season.  She is certainly repping her favorite basketball team.


Christmas Eve at Marc's parents house...

Olivia loves opening presents but has yet to figure out that she actually likes playing with them too. 

Christmas morning at my mom's house:

A long standing Williams family tradition is that after all the gifts are open, the youngest kiddo(s) get in the discarded wrapping paper for a picture, thus the tradition lives on.

The Friday after Christmas we were back in the car again to head to Norfolk to celebrate my mom's birthday and Christmas with my sister and her family (Andy and Kat came too).  We ended up at the zoo in Norfolk on a unseasonably warm day.

New Year's Eve Party girl, no worries, we were all asleep before the ball drop!

Olivia has taken to her German heritage well and can be seen here enjoying a Brotchen.  She thinks she is such a big kid when we let her have it.  But the best news of all for mom and dad is that it occupies her for like an hour or more and she still only manages to eat about 1/4 of it.  I think this should be a standard teething piece!


Olivia also loves looking out the window at her dog brothers. 


A few new milestones:
* Walks or Runs while holding Hands

* Freely roams the living room grabbing hold of any furniture, people, etc. 
* Gets into EVERYTHING!
* Talking lots more--she will babble off full conversations, though no one can really understand her.  Her favorite word to say is Kitty as she so lovingly grabs Felix.  
* She can sign "more" which she has taken to mean food, so sometimes she wakes up asking for more. 
* Has become a lot more Mommy or Daddy centered and often cries when she is dropped off at daycare. 

* She can listen to some commands--for example: put the blocks in the bag, give mommy high five, etc.  
* She loves bath and food
* She can clap her hands
* She can wave hi and bye
* She likes being naked down to her diaper
* and the most exciting of all, she took her first steps and can do about 4-5 steps unassisted before falling!

Monday, November 19, 2018

This is my journey...

Amidst all the exciting and gratitude for how far we have come in a year, I am continually reminded of the rough start uh tumble into motherhood for me (and fatherhood for Marc, but that is his story to tell)!  The past few weeks have been a crazy look back (mostly self-induced) into the memories of a year ago.  So here is the not so picture perfect story; I love the phrase ugly beautiful, because I really think that encompasses what the start of motherhood was like for me (and maybe all women).  But for our family, it really was the worst time of our life, combined with one of our most beautiful blessings.  Yes, we had great support, yes, we are incredible blessed to have a daughter that fared so well, but the behind the scenes was a pretty awful week, and I figured now, a year out, is a good time to share that part!

Because of the severe preeclampsia, I was on a 24 hour magnesium drip post delivery, which meant that I was in and out of consciousness during that time, but the more heart-wrenching part was that I was not able to see, touch, or hold my baby for OVER 24 HOURS AFTER DELIVERY.  Let that sink in for a moment.  I had a baby, but I could not see her.  During this same time, people were allowed in to visit her, so basically everyone in my family was able to go in and see Ms. Olivia while I waited in a hospital room down the hall from the NICU.  Yes, I agreed to it, because why should Olivia have to be secluded from everyone, but it does not hurt my momma heart anymore.  But as the hours clicked by, I became more and more anxious to see her, to see for myself that she was alive and doing as well as to be expected.  To see her little hands, feet, head, etc.  It was a struggle and all the while, I had nurses constantly taking my vitals and threatening to not let me see Olivia unless we could get a good BP reading (as if I had control over this).  Talk about anxiety!  

During this same time, I was asked if I planned to breastfeed, and yes, we had planned for that!  But when you have a 28 weeker, they don't go right to breast, instead you start pumping, knowing that you likely wont nurse for weeks or even months.  Thankfully, my sister was in town during the first few days of this journey, ever encouraging me to pump every 2-3 hours round the clock.  I think the continued reminding/encouraging was just what I needed, but its not without tears and loooooooooooots of them.  I pumped and pumped and pumped and finally got this: MERE DROPS!


But thankfully mere drops is all Olivia needed when she was so little.  This is probably one of the most honest pictures of life as a NICU mom, bloodshot eyes from intense crying, mixed with lack of sleep and being so excited for the tiniest vial of milk for baby girl.  I was able to walk it down and give it to the NICU nurse that fed it right to baby girl via a feeding tube (which is how she was fed for the first month of her life).  It is hard to put into words how meaningful that is.  Knowing that I could not keep my baby safe in my belly despite my best efforts, but knowing that this small bit of milk could be a HUGE help for her sensitive tummy.  I was on board! 


That same day, 26 hours after Olivia was born, I was finally able to go into the NICU and meet my sweet baby girl.  They want to wait 48 hours after delivery to hold her as delivery is very traumatic for preemies and lots of shifting to hold them is as well, but the kangaroo time with momma is also valuable so they are weighing the cost/benefit, which is a constant in the NICU.  Sometimes no option is ideal but what has the best benefit and is it worth the cost.  So for our first meeting, I was content to just be able to put my hand in and rest it on baby girl's bottom while she slept.  Preemie babies do not thrive on a lot of stimulus, so you aren't encouraged to rub their fingers through yours or rub their back, instead, light but firm pressure in one area is ideal, it helps them to feel as if they are still in the womb.  Yes, I was bawling my eyes out and with one hand raw from IVs and the other on my baby, the tears just feel down my oh so fashionable hospital gown!   


Fast forward another 24 hours, more round the clock BP checks and tests.  By this point, my vital organ function was returning to normal, my body was beginning to recover and pumping was taking off!  I made 3 vials full of milk for baby girl and my sister and nurse thought it would be fun to document it!


And the best part of all, after over 48 hours post delivery, I was that I finally got to hold baby Olivia!  They always encourage mom to hold her first and I wont lie, it is the scariest but most joyous moments of my life.  I have held so many babies and know how to handle babies, but this was like 1/4 of a baby, she was so tiny and fragile, I was so scared I would do something to hurt her, but was also sooooooooo ready to have this precious child of mine up against my chest for the first time.  It felt so right, a lot of NICU moms talk about a huge disconnect from feeling connected to their children. I definitely felt this some, but I think holding her helped to bring that gap for me! It was the most magical moment of my life!  It is absolutely crazy to look at this picture now, I seriously cannot remember how she was ever that small.  But that is motherhood, I cannot remember the last time I slept through the night, I barely remember those early days at home when she cried anytime I tried to put her down. I can vaguely remember the night we roomed in at the hospital before taking her home and not sleeping a wink because I was constantly checking her breathing. Its hard to remember the days, but we have a lifetime of memories all bundled into the last year and that is the amazing truth!  Olivia's story is certainly one for the books!



Suffice it to say, our NICU journey was powered by machines.  Machines to help Olivia breath, machines to regulate her body temperature, machines to allow me to pump, machines to read her pulse, heart rate, blood pressure, etc.  machines to exactly dispense medicine and milk as the case may be.  We learned about each machine, how to operate most of them, what numbers to watch for, etc.  So upon our release it was scary to come home to no more beeping, no more daily reports and just having to wing it when for two months we had known nothing else.  Unfortunately, there was one machine that stuck around and that was my breast pump.  Olivia, though lots and lots of trying, never really took to nursing.  This is common for super young preemies, as they learn early the bottle has no let-down period and they get spoiled and refuse mom's nipple.  So, after weeks of trying we gave into pumping with a goal to make it to a year.  During that year, I battled clogged ducts, stomach bugs, lack of sleep--when do you get to nap if you have to pump when baby is napping?, LOTS of cleaning of pump parts (thankful Marc helped lots with this), crying over spilled milk at 3am, overproduction in the beginning, to underproduction as she got older, pumping in the car more times than I can count, multiple lactation consultants, attempting every position imaginable with a 4 pound baby to try nursing, pumping at work, pumping in a utility closet, and ending out our year with a case of mastitis.  It has been a wild ride, but we did it!  Exactly one year ago today (because I was in recovery post op, they did not put me to the pump until the following day), I started my pumping journey and am proud to have made it this far, we shall see what the future holds.  I am clinging on for now, but just barely...

I know we are so far removed from those early days now, but I wanted to have a place to have this story documented for other moms who may be just starting out.  The ride is full of the good, the bad and the ugly, but make your story your own!  Ours certainly was a scary one, but I have never felt more love and support than I have in this last year...the UGLY BEAUTIFUL side of being a preemie mom!

Sunday, November 18, 2018

Happy First Birthday Olivia!

I am sure I will do a longer post in a few days, but wanted to just take a minute to appreciate that in one year our daughter went from this:



to this:




And from a 2 pound, 4 oz miracle to an adorable 18 pound + thriving one year old!


I say this all the time and I do mean it, All babies are miracles, but Olivia was a special kind of miracle.

Happy Birthday Olivia!  You know your Mom and Dad love you lots, but I suspect you will soon learn lots of other people do too!

Wednesday, October 31, 2018

Monday, October 29, 2018

Eleven Months


Eleven Months

Note, I started this the day before her 11 month birthday and am just now publishing...that is life these days, running a couple weeks behind constantly!


You guys, in 1 month (well now 20 days!), Olivia will be one year old!  Where has the time gone?  

I know I sound like a broken record but each month I claim it is my favorite age and here I am again, this has to be the favorite!  She is very interactive and active and its just fun to really see her personality development, and even a little bit her stubbornness and will.  Check back with me in a year or two when we are in the terrible twos or troublesome threes and I doubt I will be claiming it is my favorite age then!

She has ALREADY mastered the side eye!
 This month, we saw major progress in the realm of crawling....





As of her 11 month birthday she was not crawling, but spoiler alert, she is now!  We have been without her PT for about a month in a half now as they are short staffed and our PT quit, but it seems that Olivia is saying she really does not need it anyway!  

We have enjoyed the beautiful weather, taking in Oktoberfest with Uncle Andy....


The Norfolk Zoo with Tiffany and the kiddos, where she walked with Daddy on the large snake sculpture....


And got to experience her first trip to the "pumpkin patch," I use the term loosely because it is really just a field where they place pumpkins, no pumpkins are actually grown there.  Baby girl, we will get you a better pumpkin patch when you actually know the difference!


We have been enjoying lots of time on the neighborhood swing, she absolutely LOVES to swing!


And have been overall, her happy self! 


The colder weather has also brought about a few colds, sicknesses, and our favorite, hand foot and mouth disease, but she has done great with them all and seems to be feeling great these last few weeks!



Olivia continues to grow, I honestly have no idea of her weight or height, but my guess is she is about 18 pounds and 27 inches long!  She is mostly wearing 12 month clothes, unless they are pants--this girl is SHORT!   Overall, we are so happy with her continued progress and look forward to the next month when we celebrate her FIRST BIRTHDAY!



A few new milestones in the past month:
* Continuing to walk while holding your hands
* Talking lots more--she now says, Dada, Mama, yeah, bye, LaLa, and other sounds--I do not begin to believe she knows what they all mean but sometimes her timing is perfect!
* Started crawling
* First trip to Norfolk!

* First VCU game (even if it was just a scrimage)
* Upgraded to a convertible car seat
* First trip to the pumpkin patch
* First trip to the state fair